DEVELOPMENTAL DISABILITIES ADMINISTRATION

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Resource Links

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Advocacy Organizations

• Action DD (www.actiondd.org)
• American With Disabilities Act Technical Assistance  (www.adata.org)
• Children's Defense Fund  (www.childrensdefense.org)
• Community Employment Alliance (www.communityemploymentalliance.org)
• Consortium for Citizens with Disabilities  (www.c-c-d.org)
• Disability Rights Washington      http://www.disabilityrightswa.org
• Disabled Peoples' International  (www.dpi.org)
• Down Syndrome Research Online Advocacy Group  (www.dsoag.com)
• Easter Seals  (www.easterseals.org)
• Family Voices  (www.familyvoices.org)
• March of Dimes -- Washington Chapter  (www.marchofdimes.com/washington)
• National Association of State Directors of Developmental Disabilities Services  (www.nasddds.org/TeleconferenceSeries-Advocacy.shtml)
• National Organization on Disability  (www.nod.org)
• Open Doors for Multicultural Families (www.multiculturalfamilies.org)
• Parent to Parent (P2) (http://www.p2pusa.org/)
• Parent Pals.com  (http://parentpals.com/gossamer/pages)
• Partners in Policy  (http://www.partnersinpolicymaking.com)
• People First of Washington (http://www.peoplefirstofwashington.org/)
• Tacoma Area Coalition of Individuals with Disabilities  (www.tacid.org)
• The National Association for the Dually Diagnosed  (www.thenadd.org/)
• Self Advocates Becoming Empowered  (www.sabeusa.org)
• Self Advocacy Online (http://www.selfadvocacyonline.org/)
• Speaking For Ourselves  (www.speaking.org)
• TASH  (www.tash.org)
• The Arc of Grays Harbor (www.arcgh.org)
• The Arc of King County  (www.arcofkingcounty.org)
• The Arc of Kitsap/Jefferson Counties (www.arckj.org)
• The Arc of Snohomish County www.arcsno.org
• The Arc of Southwest Washington (www.arcswwa.org)
• The Arc of Spokane (www.arc-spokane.org)
• The Arc of TriCities (www.arcoftricities.com)
• The Arc of Washington State  (http://www.arcwa.org/)
• The Arc of Whatcom County (www.arcwhatcom.org)
• The Arc of Yakima County (arcofyakimacounty@gmail.com)
• The ArcLink  (www.thearclink.org)
• The Council For Disability Rights  (http://disabilityrights.org)
• Washington State Developmental Disabilities Council (www.ddc.wa.gov)

Aging & Developmental Disabilities

• Aging & Disability Services  (www.adsa.dshs.wa.gov)
• British Columbia Association for Community Living  (http://www.bcacl.org/)
• Center on Aging and Disabilities  (www.cad.med.miami.edu)
• Informative Fact Sheets for Older Adults and Family Caregivers (http://epa.gov/aging/resources/factsheets/index.htm)
• National Down Syndrome Society (http://www.ndss.org/)
• Resources on Aging with Intellectual/Developmental Disabilities  (http://www.rrtcadd.org/Resource/Publications/Info.html)

Alcohol and Substance Abuse

• Developmental Disabilities/Substance Abuse  (www.mass.gov/mddc/documents/ddsablueprint.doc)
• The Substance Abuse Resources & Disability Issues (SARDI) Program  (www.med.wright.edu/citar/sardi/index.html)
• National Association on Alcohol, Drugs and Disability Inc.  (www.naadd.org )
• National Clearinghouse for Alcohol and Drug Information  (http://health.org

Arts and Disability

• National Arts and Disability Center (http://nadc.ucla.edu/)
• National Institute of Art & Disabilities  (www.niadart.org)
• Sprout Film Festival  (www.gosprout.org/film)
• VSA Arts  (www.vsarts.org)

Asperger's Syndrome

• A.S.P.E.N.  (www.aspennj.org)
• Asperger's Disorder  (www.aspergers.com)
• Families of Adults Afflicted with Asperger's Syndrome (FAAAS)  (www.faaas.org)
• KidsHealth for Parents: Asperger's Syndrome  (www.kidshealth.org/parent/medical/brain/asperger.html)
• Yale Developmental Disabilities Clinic  (http://info.med.yale.edu/chldstdy/autism/aspergers.html)

Assistive Technology

• Family Center on Technology and Disability  (www.fctd.info)
• Washington Assistive Technology Alliance  (http://watap.org/)
• Washington Assistive Technology Foundation  (www.watf.org)

Autism

• Autism Distance Education Network  (www.albany.edu/psy/autism/autism.html)
• Autism Guidebook for WA State (http:/gov/materials/autismguidebook/13_AutismGd_E10L.pdf)
• Autism National Committee  (www.autcom.org)
• Autism Outreach Project  (www.esd189.org/autism)
• Autism Research Foundation  (www.ladders.org)
• Autism Research Institute  (www.autism.com)
• Autism Society of America  (www.autism-society.org)
• Autism Society of Tacoma/Pierce County  (www.homestead.com/autism_society_tacoma)
• Autism Society of Washington  (www.autismsocietyofwa.org)
• Autism Speaks (http://www.autismspeaks.org/index2.php?intro=1)
• Autism Now (National Autism Resource & Information Center) http://www.autismnow.org
• Center for the Study of Autism  (www.autism.org)
• FEAT (Families for Early Autism Treatment)  (www.feat.org)
• Geneva Centre for Autism  (www.autism.net)
• MAAP Services for Autism and Asperger Syndrome  (www.maapservices.org)
• Online Asperger Syndrome Information and Support  (www.aspergersyndrome.org)
• TEACCH (Treatment and Education of Autistic and Related Communication  (www.teacch.com)
• The Mind Institute, UC Davis  (www.ucdmc.ucdavis.edu/mindinstitute)
• University of Miami Center for Autism and Related Disabilities (http://www.umcard.org/)
• University of Sunderland Autism Research Unit  (http://www.espa-research.org.uk/)
• University of Washington Autism Center  (www.depts.washington.edu/uwautism)
• WA State Dept. of Health (http://www.doh.wa.gov/YouandYourFamily/IllnessandDisease/Autism.aspx)

Blind/Visually Impaired

• Community Services for the Blind and Partially Sighted  (www.csbps.com)
• National Information Clearinghouse on Children Who are Deaf-Blind  (http://www.nationaldb.org/)
• Washington State Dept. of Services for the Blind  (www.dsb.wa.gov)

Brain Injury

• Brain Injury Association of Washington  (www.braininjurywa.org)
• Brain Injury Association, Inc.  (www.biausa.org)
• University of Washington School of Medicine, Dept. of Rehabilitation Medicine  (http://depts.washington.edu/rehab)

Cerebral Palsy

• American Academy for Cerebral Palsy and Developmental Medicine  (www.aacpdm.org)
• Cerebral Palsy Connection  (www.cpconnection.com)
• March of Dimes  (http://www.marchofdimes.com/baby/birthdefects_cerebralpalsy.html)
• National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm)
• United Cerebral Palsy  (www.ucp.org)

Children

• Brave Kids.org  (www.bravekids.org)
• Child Development Institute  (www.childdevelopmentinfo.com/learning/learning_disabilities.shtml)
• ComeUnity.com  (www.comeunity.com/disability/cerebral_palsy)
• Connect for Kids  (http://sparkaction.org/)
• Department of Early Learning (www.del.wa.gov/)
• NICHCY (National Information Center for children and Youth with Disabilities)  (www.nichcy.org)

Deaf and Hard of Hearing

• Deaf Linx (http://www.deaflinx.com/)

Disability Studies

• Canadian Centre on Disability Studies  (http://www.disabilitystudies.ca)
• Center for Disabilities and Development  (http://www.uihealthcare.org/cdd/)
• Center on Human Development and Disability  (http://depts.washington.edu/chdd)
• Center on Human Policy  (http://thechp.syr.edu)
• Disability History  http://www.disabilityhistorywiki.org
• Human Services Research Institute  (http://www.hsri.org/index.asp)
• Smithsonian National Museum of American History (Disability Rights Movement)  (www.americanhistory.si.edu/disabilityrights/welcome.html)

Down Syndrome

• Down Syndrome Educational Trust  (www.downsed.org)
• Down Syndrome Health Issues  (www.ds-health.com)
• National Down Syndrome Society  (www.ndss.org)
• National Association for Down Syndrome  (www.nads.org)
• The Canadian Down Syndrome Society  (www.cdss.ca)

Early Intervention

• Infant Toddler Early Prevention Program  ( http://del.wa.gov/ESIT/)

Employment

• Best Buddies International  (www.bestbuddies.org)
• Gladnet  (www.gladnet.org)
• JAN (Job Accommodation Network)  (janweb.icdi.wvu.edu)
• National Collaborative on Workforce and Disability   (http://www.ncwd-youth.info/)
• U.S. Office of Disability Employment Policy  (http://www.dol.gov/odep/)
• Office of Employment Support Programs  (www.ssa.gov/work)
• Washington Initiative for Supported Employment (http://www.theinitiative.ws/)
• Work Opportunities  (www.workopportunities.org)
• Your Ticket To Work (https://yourtickettowork.com/web/ttw/home)

Epilepsy

• British Epilepsy Association  (www.epilepsy.org.uk)
• Epilepsy: Questions & Answers (Southern Illinois University)   (www.siumed.edu/neuro/clinic/epilepsy/QuestionAnswers.html)
• Epilepsy.com  (www.epilepsy.com)
• Epilepsy Foundation  (www.efa.org)
• National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm)
• National Society for Epilepsy  (www.epilepsynse.org.uk)

Family Support

• Beach Center on Disability  (www.beachcenter.org)
• Family Caregiving 101 (www.familycaregiving101.com)
• Parents Helping Parents  (www.php.com)
• The Fathers Network (www.fathersnetwork.org)

Fetal Alcohol Syndrome

• Fetal Alcohol Spectrum Disorders Center for Excellence (www.fasdcenter.samhsa.gov)
• U. of Washington School of Medicine Fetal Alcohol and Drug Unit (http://depts.washington.edu/fadu)

Health Portals

• Disability Resources.org (www.disabilityresources.org)
• HealthFinder.gov  (www.healthfinder.gov)
• Health.gov  (www.health.gov)
• InteliHealth  (www.intelihealth.com)
• MayoClinic.com  (www.mayohealth.org)
• Medline Plus  (http://medlineplus.gov)
• Network of Care (http://www.networkofcare.org)

Healthcare

• Adolescent Health Transition Project  (www.depts.washington.edu/healthtr)
• Center on Human Development and Disability  (www.depts.washington.edu/chdd)
• Children's Hospital & Regional Medical Center  (www.seattlechildrens.org)
• Family Voices  (www.familyvoices.org)
• National Network of Libraries of Medicine (http://nnlm.gov)
• SafetyNet.US (www.isafetynet.org)
• Washington State Home Care Quality Authority (http://www.hcrr.wa.gov/default.htm)

Independent Living

• Community Living Exchange (www.cshp.rutgers.edu)
• Housing and Urban Development (www.hud.gov/groups/disabilities.cfm)
• Independent Living (www.independentliving.org)
• Independent Living Research Utilization at TIRR (www.ilru.org)

Inclusion

• Inclusion.com  (www.inclusion.com)
• Institute for Community Inclusion  (www.communityinclusion.org)
• Institute on Community Integration  (http://ici.umn.edu)
• Inclusion Research Network  (www.inclusionresearch.org)
• Kid Source Online  (www.kidsource.com)

Legal

• Columbia Legal Services (http://columbialegal.org/)
• Council of Parent Attorneys and Advocates  (www.copaa.net)
• National Guardianship Association (www.guardianship.org)
• Law, Health Policy & Disability Center  (http://disability.law.uiowa.edu)
• Disability Rights Washington (http://www.disabilityrightswa.org/)
• Northwest Immigrant Rights Project (http://www.nwirp.org/)
• Northwest Justice Project (http://nwjustice.org/get-legal-help)
• Wrightslaw  (www.wrightslaw.com)

Media

• Disability History Museum  (www.disabilitymuseum.org)
• Disability World  (www.disabilityworld.org)
• Enabled Online  (www.enabledonline.com)
• Exceptional Parent Magazine  (http://www.eparent.com)
• Family Village  (www.familyvillage.wisc.edu/index.htmlx)
• Mainstream  (www.mainstream-mag.com)
• On A Roll Radio  (www.onarollradio.com)

Medical/Medication

• Harvard Health Publications  (www.health.harvard.edu)
• MedlinePlus (http://www.nlm.nih.gov/medlineplus/)
• Medscape  (www.medscape.com)
• Merck Manual  (http://www.merckmanuals.com/home/index.html)
• National Organization for Rare Disorders (http://www.rarediseases.org/)
• National Institute of Neurological Disorders (http://www.nih.gov/about/almanac/organization/NINDS.htm)
• Prescription Drug Info  (www.prescriptiondrug-info.com)

Positive Behavior Support

• Michigan Positive Behavior Support Network  (www.bridges4kids.org/PBS/PBS.html)
• University of Delaware Positive Behavior Support Project  (www.udel.edu/cds/pbs)

Prader-Willi Syndrome

• International Prader-Willi Syndrome Organization  (www.ipwso.org)
• Prader-Willi Syndrome Association  (www.pwsausa.org)

Quality

• The Council on Quality and Leadership (http://www.c-q-l.org/)

Recreation

• Accessible Recreational Travel  (www.voaww.org/art)
• Cerebral Palsy International Sports & Recreation Association  (www.cpisra.org)
• Easter Seals  (www.easterseals.com)
• Kids Camps  (www.kidscamps.com/special_needs/developmt_disability.html)
• National Center on Physical Activity and Disability  (www.ncpad.org
• Special Olympics  (www.specialolympics.org)

Research

• National Center for the Dissemination of Disability Research  (www.ncddr.org)

Self-Determination

• Individualized Funding Information Resources  (http://members.shaw.ca/bsalisbury)
• National Program Office on Self-determination  (www.self-determination.org)
• Neighbours Inc.  (www.neighbours-inc.com)
• Self Determination Synthesis Project  (www.uncc.edu/sdsp/home.asp)
• Speaking for Ourselves  (www.speaking.org)

Special Education

• All Kinds of Minds  (www.allkindsofminds.org)
• Council for Exceptional Children  (www.cec.sped.org)
• International Journal of Special Education  (www.internationaljournalofspecialeducation.com)
• New Horizons for Learning  (www.newhorizons.org)
• Office of Special Education Programs  (www.ed.gov/about/offices/list/osers/osep/index.html)
• Partners in Education  (www.partnersinpolicymaking.com/education)
• Wash. State Office of Superintendent of Public Instruction  (www.k12.wa.us/specialed)
• PACER Center (Parent Advocacy Coalition for Educational Rights)  (www.pacer.org)
• Washington PAVE (Parents Are Vital in Education)  (www.washingtonpave.com)

Transportation

• Wash. State Agency Council on Coordinated Transportation  (www.wsdot.wa.gov/acct/default.htm)

U.S. Government

• The Access Board  (www.access-board.gov)
• Center for Medicaid and CHIP Services (CMCS):  http://www.medicaid.gov/
• Centers for Medicare and Medicaid Services  (http://www.cms.gov)
• Centers for Disease Control and Prevention (www.cdc.gov/ncbddd/dd/default.htm)
• DisabilityInfo  (www.disabilityinfo.gov)
• FirstGov - The official website for searching the US Government  (http://firstgov.gov)
• National Council on Disability  (www.ncd.gov )
• President's Committee on People with Intellectual Disabilities  (www.acf.hhs.gov/programs/pcpid/index.html)
• US Dept. of Health & Human Services (http://www.hhs.gov/)
• US Dept. of Justice - Americans with Disabilities Act  (www.usdoj.gov/crt/ada/adahom1.htm)
• The White House – Disabilities Issues (http://www.whitehouse.gov/issues/disabilities)